Families' perceptions of how we care for their dying relatives

PROGRAMME

Assessing the quality of care for people dying of cancer in hospital - development of the QUALDEATH Framework

Honorary Professor Peter Hudson

High quality end of life care involves addressing patients’ physical, psychosocial, and spiritual needs.  Measuring the quality of care associated with dying and death is an important component of health care  however there is a lack of evidence-based, systematic processes to examine the quality of dying and death of patients in hospitals in Australia. We developed an appraisal framework (QualDeath) for reviewing the quality of dying and death for patients expexted to die from advanced cancer.

What can we learn from the voices of bereaved relatives? 

Dr Catriona Mayland

Evaluating quality of care for the dying is complex and challenging: the views of bereaved relatives offer us an opportunity to learn from their experiences and use their feedback to improve care.  So, what messages can we learn from the bereaved relatives? Who provides this feedback? What are their motivations for doing so? And how do we improve care using their feedback?

Questions and Answers

Moderated by Professor Carl Johan Furst

Questions can be submitted using the Chat function during the webinar. 

SPEAKERS

Honorary Professor Peter Hudson, RN PhD

University of Melbourne, Australia

Professor Peter Hudson is a registered nurse with approximately 30 years' experience in palliative care research, education and clincial practice.   He is currently the Director of the Centre for Palliative Care (www.centreforpallcare.org), an academic department based at St Vincent's Hospital and a Collaborative Centre of the University of Melbourne, Australia, and his research programme incorporates palliative care health services evaluation, psychosocial support and symptom management.  His particular interest is developing and evaluating strategies to improve the psychosocial support for patients and families affected by serious illness. 

Dr Catriona Mayland, MBChB, MD, FRCPS (Glas)

Sheffield University, UK

Dr Mayland is currently completing a Senior Research Fellowship, funded by Yorkshire Cancer Research, at the University of Sheffield.  She has over 15 years’ experience evaluating quality of care for the dying, working with bereaved relatives to gain their perspective.  She has developed, validated, and used the ‘Care Of the Dying Evaluation’ (CODETM) tool on a local, national and international level.  Her other research interests include palliative care integration, especially related to those with head and neck cancer, and addressing care inequities.  Clinically, she works at Weston Park Cancer Centre in Sheffield.

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