Care of the dying evaluation (CODE™)

Care of the Dying Evaluation (CODE™) is a self-completion post-bereavement questionnaire, based on the key components of best practice in end of life care. It assesses quality of care for the dying through 32 main questions, reflecting core palliative care principles. Ten additional questions focus on demographic details.

Developed and managed by Dr Catriona Mayland, CODE™ is a user-friendly, comprehensive outcome measure for care of the dying that can be used to benchmark individual organisations and identify areas for improvement, as well as in the context of research studies.

CODE™ has been widely translated and is now available in ten languages, with more in development. Currently available languages are as follows:

English
Spanish
Portuguese
Norwegian
Swedish
Polish
German
Dutch
Icelandic
Slovenian

Read the original papers here:

CR Mayland, C Lees, A Germain, B Jack, TF Cox, SR Mason, A West, JE Ellershaw. Caring for those who die at home: the use and validation of 'Care of the Dying Evaluation' (CODE) with bereaved relatives.

BMJ Support Palliat Care 201; :167-174 Published Online First: 28 March 2014 doi:10.1136/bmjspcare-2013-000596

Mayland CR, Gerlach C, Sigurdardottir K et al. Assessing quality of care for the dying from the bereaved relatives’ perspective: using pre-testing survey methods across 7 countries to develop an international outcome measure.

Palliative Medicine 2019; 33 (3): 357-368 doi:.10.1177/0269216318818299

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If you would like to use CODE™ to evaluate the care that is provided in your own setting, please use the button below to make an initial enquiry.

Care of the dying evaluation (CODE™)

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