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The work of the International Collaborative is driven by a portfolio of Project Groups, enabling colleagues from around the world to work together on topics of shared interest that will contribute to the development of 'best care for the dying person'.    

Reintroduced in 2024, Project Groups have a maximum term of three years and must be led by a Full Member of the Collaborative.  Project Groups also set annual objectives and must report their progress to the Executive Committee on a yearly basis.

 

Participation in these groups is open to all members of the Collaborative.  If you would like to join an existing Project Group, please email the Coordinating Centre.

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This page will develop over time as our range of Project Groups grows, so check back regularly and subscribe to our newsletter to find out when new groups are created.   

If you are a Full Member of the Collaborative and have a Project Group idea, click here to download the submission proforma.

ACTIVE PROJECT GROUPS

Project Ref
Title
Lead
Aim
PG001Q
Care of the Dying Evaluation (CODE)
Dr Catriona Mayland, UK
To support the translation, cultural adaptation and validation of CODE at an international level and to facilitate shared learning to drive quality improvement in care for the dying
PG002C
10/40 Model Staff Perception Questionnaire
Dr Susie Wilkinson, UK
To pilot and disseminate a self-perception questionnaire to evaluate the knowledge, skills and experience of clinical staff using a care plan to support patients in their last days of life
PG003C
International Benchmarking in Care for the Dying
Prof John Ellershaw, UK
To explore and develop a strategy for international benchmarking to underpin best care for the dying
PG004C
Project MiMI - Imminent Death in Internal Medicine
Dr Rui Carneiro, Portugal
To validate a model of good practice for imminently dying patients in internal medicine wards, identifying doctors' training needs and developing a Core Curriculum to guide care/communication with dying people and their families
PG005R
An International Network of Liquid Biopsy Biobanks in Palliative Care
Prof Lia van Zuylen, Netherlands
To establish an international network of institutes collecting blood/urine samples of patients with a life expectancy of less than three months to support translational research and gain better understanding of symptom development/marking of the dying phase
PG006Q
The Serious Illness Care Programme
Prof Anna Sandgren, Sweden
To facilitate the development of studies to progress the implementation and evaluation of the Serious Illness Care Programme
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